Please Sign a Petition to Allow the NHS to Give a Child Life-Saving Medicine

Please sign the following petition to David Cameron  and Alexion Pharmaceuticals to allow 12 years old Abi to have life saving medicine.

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Because the medication this child requires is not on the NHS approved list 12 year old Abi’s life is under threat.

Please read the following and sign the petition and if you have time please also write to David Cameron and Alexion Pharmaceuticals and ask them to allow Abi her life saving medicine – scroll down for contact details. Also a Go Fund Me link to help raise money for her treatment

“Our daughter, twelve-year-old Abi, has a rare kidney disease that could kill her in five years.

Under lock and key in the hospital where she is treated is the medicine that could save her life.

But thanks to a cruel loophole, doctors are forbidden from giving it to our daughter. That’s why we’ve started a campaign with the Sunday People.

Abi’s one-in-a-million illness is too rare to be covered by NHS England’s drug funding policy but not rare enough to unlock cash for exceptional cases.

And the manufacturer Alexion Pharmaceuticals has refused to drop the eye-watering £136,000-a-year price, ­making it impossible for us to buy the drug privately.

Allow the NHS to give Abi Longfellow her life-saving medicine”

Please read more and sign the petition:
https://www.change.org/p/david-cameron-mp-allow-the-nhs-to-give-abi-longfellow-her-life-saving-medicine?source_location=petition_footer&algorithm=curated_trending

More Action you can take: Contact both David Cameron and Alexion Pharmaceuticals

Please write to David Cameron and ask him to Allow the NHS to give Abi Longfellow this vital medicine.

David Cameron

Parliamentary

House of Commons, London, SW1A 0AA
Tel: 020 7219 3475
Fax: 020 7219 0918

Constituency

West Oxfordshire Conservative Association, Waterloo House, 58-60 High Street, Witney, Oxfordshire, OX28 6HJ
Tel: 01993 702302

Departmental

10 Downing Street, London, SW1A 2AA
Tel: 020 7270 3000

http://www.parliament.uk/biographies/commons/mr-david-cameron/1467

It is more effective to send a postal letter but if this is not possible here is David Cameron’s email contact form:

https://email.number10.gov.uk/

Twitter:  https://twitter.com/David_Cameron

Alexion Pharma UK Ltd  Please write and ask Alexion pharmaceuticals to drop the price 

Postal Address

3 Furzeground Way
Stockley Park
Uxbridge, Middlesex, UB11 1EZ
Telephone
+44 (0) 208 744 6600
Email
alexion.uk@alxn.com
Alexion Home page
Please be polite abusive correspondence is rarely read or acted upon.
To help Abi raise money for her life-saving drug visit :
http://www.gofundme.com/Get-Abi-To-Florida
There is no reason, at least no rational or moral reason why the NHS cannot give this life saving drug to this unfortunate child. In fact it is in my opinion highly unethical to deny anymore life saving treatment or indeed any medical treatment that is available. The rules need to change.

The right to the best medical treatment that medical science has to offer should be a basic human right for each and every person on the planet.

 

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