Remember an earlier blog entry with a similar request to sign a petition to help Abi Longfellow get the medication she needs.
The is not an isolated case as the child in the petition below desperately needs the same medication which is, as in the case of Abi Longfellow, being denied him.
Please sign the petition
Petitioning NHS England Commissioning Board
Reconsider your decision to refuse Eculizumab for Lewis Brimble
“My name is Lewis Brimble, I’m 15.
Recently the NHS declined my application for Eculizumab, the only drug that could save my life.
I have had MPGN, a life threatening, ultra rare kidney disease since I was 9 years old. Very quickly after I was diagnosed it progressed into end stage renal failure, so I spent 2 years on dialysis. Eventually, when I was 11 my mum donated her kidney to me, and I slowly got to go back to being a normal boy for a bit.
In March 2013, after 15 months, I found out that my disease had come back and that there was damage to my transplanted kidney. Since then I have been slowly deteriorating. My doctors have made it clear that there is only one drug, Eculizumab, that can stop my disease from getting worse and forcing me to go back to a nightmare half-life on dialysis.”
Read More and please sign the petition
More action you can take
Please always be polite, this is very important, abusive communications are unlikely to be read or considered.
Write to the NHS commissioning board and ask them to reconsider their decision to refuse Eculizumab for Lewis Brimble
You can contact the Customer Contact Centre in a number of ways:
- By telephone: 0300 311 22 33 (Monday to Friday 8am to 6pm, excluding English Bank Holidays).
- Email: email@example.com
- Post: NHS England, PO Box 16738, Redditch, B97 9PT
You could also write to David Cameron and request that both children receive the medication that they urgently require.
House of Commons, London, SW1A 0AA
Tel: 020 7219 3475
Fax: 020 7219 0918
West Oxfordshire Conservative Association, Waterloo House, 58-60 High Street, Witney, Oxfordshire, OX28 6HJ
Tel: 01993 702302
10 Downing Street, London, SW1A 2AA
Tel: 020 7270 3000
It is more effective to send a postal letter but if this is not possible here is David Cameron’s email contact form:
I am deeply concerned over these two children whom it seems are not getting the medication (Eculizumab) that they need because it is too expensive.
How many others are in a similar situation?
Health care is surely a universal right, a human right and no one in any country should die or be chronically ill because they cannot have access to medicine.
These medicines are life saving drugs that each child urgently needs in order to live a full life as in the case of Luis Brimble or to survive as in the case of Abi Longfellow. Surely both these children have the right to have whatever medicine is available regardless of their ability to pay or the NHS’s. The UK is a rich country, denying these children, and no doubt many others, life saving medicine is deeply unethical.