Petition to Help Lewis Brimble to Get the Medication he Needs

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Remember an earlier blog entry with a similar request to sign a petition to help  Abi Longfellow get the medication she needs.

The is not an isolated case as the child in the petition below desperately needs the same medication which is, as in the case of  Abi Longfellow, being denied him.

Please sign the petition

Petitioning NHS England Commissioning Board

Reconsider your decision to refuse Eculizumab for Lewis Brimble

“My name is Lewis Brimble, I’m 15.

Recently the NHS declined my application for Eculizumab, the only drug that could save my life.

I have had MPGN, a life threatening, ultra rare kidney disease since I was 9 years old. Very quickly after I was diagnosed it progressed into end stage renal failure, so I spent 2 years on dialysis. Eventually, when I was 11 my mum donated her kidney to me, and I slowly got to go back to being a normal boy for a bit.

In March 2013, after 15 months, I found out that my disease had come back and that there was damage to my transplanted kidney. Since then I have been slowly deteriorating. My doctors have made it clear that there is only one drug, Eculizumab, that can stop my disease from getting worse and forcing me to go back to a nightmare half-life on dialysis.”

Read More and please sign the petition
https://www.change.org/p/nhs-england-commissioning-board-reconsider-your-decision-to-refuse-eculizimab-for-lewis-brimble

More action you can take

Please always be polite, this is very important, abusive communications are unlikely to be read or considered.

Write to the NHS commissioning board and ask them to reconsider their decision to refuse Eculizumab for Lewis Brimble

Contact Details

You can contact the Customer Contact Centre in a number of ways:

  • By telephone: 0300 311 22 33 (Monday to Friday 8am to 6pm, excluding English Bank Holidays).
  • Email: england.contactus@nhs.net
  • Post: NHS England, PO Box 16738, Redditch, B97 9PT

More Details
http://www.england.nhs.uk/contact-us/

Website
http://www.england.nhs.uk/2013/03/26/nhs-england/

You could also write to David Cameron and request that both children receive the medication that they urgently require.

David Cameron

Parliamentary

House of Commons, London, SW1A 0AA
Tel: 020 7219 3475
Fax: 020 7219 0918

Constituency

West Oxfordshire Conservative Association, Waterloo House, 58-60 High Street, Witney, Oxfordshire, OX28 6HJ
Tel: 01993 702302

Departmental

10 Downing Street, London, SW1A 2AA
Tel: 020 7270 3000

http://www.parliament.uk/biographies/commons/mr-david-cameron/1467

It is more effective to send a postal letter but if this is not possible here is David Cameron’s email contact form:

https://email.number10.gov.uk/

Twitter:  https://twitter.com/David_Cameron

I am deeply concerned over these two children whom it seems are not getting the medication (Eculizumab) that they need because it is too expensive.

How many others are in a similar situation?

Health care is surely a universal right, a human right and no one in any country should die or be chronically ill because they cannot have access to medicine.

These medicines are life saving drugs that each child urgently needs in order to live a full life as in the case of Luis Brimble or to survive as in the case of Abi Longfellow. Surely both these children have the right to have whatever medicine is available regardless of their ability to pay or the NHS’s. The UK is a rich country, denying these children, and no doubt many others, life saving medicine is deeply unethical.

 

 

 

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Please Sign a Petition to Allow the NHS to Give a Child Life-Saving Medicine

Please sign the following petition to David Cameron  and Alexion Pharmaceuticals to allow 12 years old Abi to have life saving medicine.

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Because the medication this child requires is not on the NHS approved list 12 year old Abi’s life is under threat.

Please read the following and sign the petition and if you have time please also write to David Cameron and Alexion Pharmaceuticals and ask them to allow Abi her life saving medicine – scroll down for contact details. Also a Go Fund Me link to help raise money for her treatment

“Our daughter, twelve-year-old Abi, has a rare kidney disease that could kill her in five years.

Under lock and key in the hospital where she is treated is the medicine that could save her life.

But thanks to a cruel loophole, doctors are forbidden from giving it to our daughter. That’s why we’ve started a campaign with the Sunday People.

Abi’s one-in-a-million illness is too rare to be covered by NHS England’s drug funding policy but not rare enough to unlock cash for exceptional cases.

And the manufacturer Alexion Pharmaceuticals has refused to drop the eye-watering £136,000-a-year price, ­making it impossible for us to buy the drug privately.

Allow the NHS to give Abi Longfellow her life-saving medicine”

Please read more and sign the petition:
https://www.change.org/p/david-cameron-mp-allow-the-nhs-to-give-abi-longfellow-her-life-saving-medicine?source_location=petition_footer&algorithm=curated_trending

More Action you can take: Contact both David Cameron and Alexion Pharmaceuticals

Please write to David Cameron and ask him to Allow the NHS to give Abi Longfellow this vital medicine.

David Cameron

Parliamentary

House of Commons, London, SW1A 0AA
Tel: 020 7219 3475
Fax: 020 7219 0918

Constituency

West Oxfordshire Conservative Association, Waterloo House, 58-60 High Street, Witney, Oxfordshire, OX28 6HJ
Tel: 01993 702302

Departmental

10 Downing Street, London, SW1A 2AA
Tel: 020 7270 3000

http://www.parliament.uk/biographies/commons/mr-david-cameron/1467

It is more effective to send a postal letter but if this is not possible here is David Cameron’s email contact form:

https://email.number10.gov.uk/

Twitter:  https://twitter.com/David_Cameron

Alexion Pharma UK Ltd  Please write and ask Alexion pharmaceuticals to drop the price 

Postal Address

3 Furzeground Way
Stockley Park
Uxbridge, Middlesex, UB11 1EZ
Telephone
+44 (0) 208 744 6600
Email
alexion.uk@alxn.com
Alexion Home page
Please be polite abusive correspondence is rarely read or acted upon.
To help Abi raise money for her life-saving drug visit :
http://www.gofundme.com/Get-Abi-To-Florida
There is no reason, at least no rational or moral reason why the NHS cannot give this life saving drug to this unfortunate child. In fact it is in my opinion highly unethical to deny anymore life saving treatment or indeed any medical treatment that is available. The rules need to change.

The right to the best medical treatment that medical science has to offer should be a basic human right for each and every person on the planet.